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March is Sleep Apnea
Awareness Month! Studies suggest that more than 50% of people with
bronchiectasis also have obstructive sleep apnea (OSA).1 


Common symptoms of
sleep apnea include loud snoring, gasping for air in your sleep, difficulty
staying asleep, waking up with a dry mouth, having headaches in the morning,
and feeling sleepy throughout the day. If you share a bed with someone, they
might also witness sleep apnea symptoms, like breathing that stops and then
restarts as you sleep. 


For people with both
bronchiectasis and sleep apnea, the most common symptoms are snoring and
daytime sleepiness. However, some people with bronchiectasis have OSA without
recognizing any symptoms.1 If your doctor has not already started
the conversation, talk to them at your next appointment about whether you
should be evaluated for sleep apnea. 


Resources 
1. Borekci S, Hacoglu
Y, Musellim B. Investigation of obstructive sleep apnea in adult non-cystic
fibrosis bronchiectasis patients. Eur Resp J. 2019;54(63). doi:10.1183/13993003.congress-2019.PA631

March is Sleep Apnea
Awareness Month! Studies suggest that more than 50% of people with
bronchiectasis also have obstructive sleep apnea (OSA).1 
Common symptoms of
sleep apnea include loud snoring, gasping for air in your sleep, difficulty
staying asleep, waking up with a dry mouth, having headaches in the morning,
and feeling sleepy throughout the day. If you share a bed with someone, they
might also witness sleep apnea symptoms, like breathing that stops and then
restarts as you sleep. 
For people with both
bronchiectasis and sleep apnea, the most common symptoms are snoring and
daytime sleepiness. However, some people with bronchiectasis have OSA without
recognizing any symptoms.1 If your doctor has not already started
the conversation, talk to them at your next appointment about whether you
should be evaluated for sleep apnea. 


Resources 
1. Borekci S, Hacoglu
Y, Musellim B. Investigation of obstructive sleep apnea in adult non-cystic
fibrosis bronchiectasis patients. Eur Resp J. 2019;54(63). doi:10.1183/13993003.congress-2019.PA631

March is Sleep Apnea
Awareness Month! Studies suggest that more than 50% of people with
bronchiectasis also have obstructive sleep apnea (OSA).1 


Common symptoms of
sleep apnea include loud snoring, gasping for air in your sleep, difficulty
staying asleep, waking up with a dry mouth, having headaches in the morning,
and feeling sleepy throughout the day. If you share a bed with someone, they
might also witness sleep apnea symptoms, like breathing that stops and then
restarts as you sleep. 


For people with both
bronchiectasis and sleep apnea, the most common symptoms are snoring and
daytime sleepiness. However, some people with bronchiectasis have OSA without
recognizing any symptoms.1 If your doctor has not already started
the conversation, talk to them at your next appointment about whether you
should be evaluated for sleep apnea. 


 Resources 
 1. Borekci S, Hacoglu
Y, Musellim B. Investigation of obstructive sleep apnea in adult non-cystic
fibrosis bronchiectasis patients. Eur Resp J. 2019;54(63). doi:10.1183/13993003.congress-2019.PA631

National “I Want You to Be Happy” Day 😊💙

Today is simple… and powerful.

I want you to be happy.
Not “perfect day” happy.
Not “everything is easy” happy.
Just real-life, breathing-through-it, doing-the-best-we-can happy.

Living with COPD, bronchiectasis, NTM -- or caring for someone who does -- isn’t always light. So today feels like a good day to talk about intentional happiness.

Here are a few gentle ideas for both patients and caregivers:

🌬️ For patients:

Step outside (even for 2–5 minutes) and take slow, supported breaths. Fresh air + paced breathing can shift your whole mood.

Play a song that lifts you -- even if you just sway in your chair.

Text someone in this community and say, “Thinking of you.”

Celebrate something small: good sats, finishing airway clearance, making it through a tough morning.

🤝 For caregivers:

Take 10 guilt-free minutes just for you. Sit. Breathe. Quiet.

Accept help if it’s offered -- happiness sometimes looks like sharing the load.

Do one thing that’s only for your joy today (music, walk, call a friend, favorite snack).

Remember: your well-being matters just as much.

💙 And for all of us…

Happiness doesn’t have to be big. It can be:

A fluffy pet beside you

A steady breathing day

A laugh during Coffee Break

A message that reminds you you’re not alone

Let’s make this interactive:

✨ Drop ONE thing that helps you feel a little happier on hard days.
✨ Or tag someone here and tell them, “I want you to be happy.”

You never know whose day you might gently lift.

I want you to be happy. Truly.
And I’m really grateful we get to do this together!

Hello! Are you doing airway clearance on a daily basis? Airway clearance is frequently compared to flossing your teeth. Clearing out your airways lessens the chances of getting a respiratory infection. Bad respiratory infections can lead to cavity formation in your lungs , similar to a cavity in your teeth. Below is the link to manual airway clearance techniques. https://www.bronchiectasisandntminitiative.org/Learn-More/I-am-a-Patient-or-Caregiver/Coping-with-Airway-Mucus/Manual-Airway-Clearance-Techniques

Better after talk w/John, PtAmbas.

Hello! The month of March has begun!!! Daylight savings time begins in 7 days. We have endured a very challenging winter with frigid temperatures and a lot of snow. March reminds us that even after the longest winters, healing can quietly begin again. Spring and nicer weather are on its way — and so is renewed energy, and hope.Here’s to a month filled with resilience .💙 
Throughout this month, we will focus on pulmonary rehabilitation, airway clearance devices and health equity. 

Hello! Below is an excellent, comprehensive article on gastrointestinal issues, focusing on why some people belch more frequently. Reasons for frequent belching can include GERD, a hiatal hernia and other conditions. https://www.everydayhealth.com/healthy-living/are-you-burping-too-much/?slot=0&xid=nl_EHNLdigestive_2026-02-28_44414463&utm_source=Newsletters&nl_key=nl_digestive_health&utm_medium=email&utm_content=2026-02-28_blast_44414463&utm_campaign=Digestive_Health&lctg=5a4ee3123f92a41e9a1b5709&zdee=gAAAAABl1p9sFJ1RkXaC3Vh7vJnM49VJaAFPsdWdZZv1cgDyDjEJfHRZs0iD9ai8DSbE1svqGD88HtLqpaq5YD5ujo0HG0M725tSbIe8PwHZFk4TqcURT_o%3D

Hello!  Are you interested in watching a video? The video below on GERD/ Acid Reflux, presented by Dr. Gwen Huitt, ( formerly of National Jewish Health) offers practical tips on managing acid reflux effectively https://m.youtube.com/watch?v=lf_hSgJ21BY
Please let us know if you have any questions. :) 

Happy Rare Disease Day! Each year, this day shines a spotlight on rare diseases, helping to raise awareness for the 300 million+ people around the world who live with a rare disease. 

Did you know living with a rare disease isn’t actually that uncommon? According to the National Organization for Rare Diseases (NORD), one in every 10 Americans is affected by a rare disease. 

In the United States, a rare disease is generally considered one affecting fewer than 200,000 people across the country. By the numbers, NTM is a rare disease, impacting an estimated 86,000-200,000+ Americans. Bronchiectasis is technically not a rare disease; between 340,000 and 522,000 adults are receiving treatment for bronchiectasis in the U.S. However, bronchiectasis is still underrecognized and often misdiagnosed. 

As you may know firsthand, people with rare or uncommon diseases often face additional challenges, from difficulty getting a timely diagnosis to limited research and lack of community support. In honor of Rare Disease Day, we stand together with millions of people around the world. We encourage you to share your story and connect with others who understand what it’s like to live with a rare disease.

Hello! Many BNTM patients don’t understand the need for a
gastroenterologist. We are often
overloaded by the number of specialists that we are advised to see. I am
reviewing basic GI testing so you can be empowered to understand and ask the
right questions when you do see a gastroenterologist.

🌡️ Esophageal pH monitoring
measures acid levels in your esophagus. It tells your doctor: How much acid is
refluxing from the stomach into the esophagus. How often reflux happens, and
how long acid stays there.

What does “pH” actually mean? pH is a scale that measures acidity:
7 = neutral, below 7 = acidic. The lower the number, the more acidic your
stomach is; stomach acid is very acidic (around pH 1–3). Your esophagus should
not be exposed to that acid frequently. If testing shows repeated drops in
esophageal pH below 4, it usually indicates significant acid.

💡 Why This Matters for BNTM-
significant acid can weaken the lower esophageal sphincter (LES) and the
esophageal clearance, which is how well acid is pushed back down. This can lead
to: chronic reflux, silent reflux, inflammation, difficulty swallowing, and or
chest discomfort.

pH testing helps determine whether acid is truly the
cause of symptoms; it checks whether acid is damaging the esophagus or if
something else is going on. pH testing can be done the traditional way, with a
thin catheter placed in your nose or with a Bravo Capsule (a camera inserted
into your esophagus) during an EGD. Please discuss these options with your
healthcare provider. Understanding what is really going on in your upper
gastrointestinal system will determine what meds are most suitable for you. You
do not want to be on the wrong medications for an extended period of time.

Hello! Many BNTM patients don’t understand the need for a gastroenterologist. We are often overloaded by the number of
specialists that we are advised to see. I am reviewing basic GI testing so you
can be empowered to understand and ask the right questions when you do see a gastroenterologist.

🌡️ Esophageal pH
monitoring measures acid levels in your esophagus. It tells your doctor: How
much acid is refluxing from the stomach into the esophagus. How often reflux happens,
and how long acid stays there.

What does “pH” actually mean? pH is a scale that measures
acidity: 7 = neutral, below 7 = acidic. The lower the number, the more acidic
your stomach is; stomach acid is very acidic (around pH 1–3). Your esophagus
should not be exposed to that acid frequently. If testing shows repeated drops
in esophageal pH below 4, it usually indicates significant acid.

💡 Why This Matters for
BNTM- significant acid can weaken the
lower esophageal sphincter (LES) and the esophageal clearance, which is how
well acid is pushed back down. This can lead to: chronic reflux, silent reflux,
inflammation, difficulty swallowing, and or chest discomfort.

pH testing helps determine whether acid is truly the cause
of symptoms; it checks whether acid is damaging the esophagus or if something
else is going on. pH testing can be done the traditional way, with a thin catheter
placed in your nose or with a Bravo Capsule (a camera inserted into your
esophagus) during an EGD. Please discuss these options with your healthcare
provider. Understanding what is really going on in your upper gastrointestinal system
will determine what meds are most suitable for you. You do not want to be on
the wrong medications for an extended
period of time.

Hello! Staying proactive about your health isn’t optional —it
is essential for our community.🔍 Early Insight = Better Outcomes.
Has your healthcare provider suggested Manometry for you?

Manometry helps detect non-obvious changes before symptoms become
serious. Catching issues early means more treatment options, less invasive
interventions, and better overall health management. Testing gives your
healthcare team measurable data — not guesses — so they can monitor progression
and adjust treatment at the right time.

If you are a BNTM patient dealing with reflux, or unexplained
digestive symptoms, manometry testing can be a game-changer. Performed by a
gastroenterologist, manometry is a specialized test that measures how well the
muscles and nerves in your digestive tract are working and how well the lower
esophageal sphincter,(LES) opens and closes

Why It Matters for BNTM patients:

✅ Identifies swallowing disorders
(dysphagia)

✅ Diagnoses motility disorders
Conditions like esophageal spasm or ineffective motility

✅ Guides treatment
decisions-results help your care team choose the right medications, therapies,
or interventions.

✅ Prevents complications-
untreated motility issues can lead to malnutrition, aspiration, or worsening
reflux. Manometry isn’t just a test — it’s a roadmap for your healthcare
provider.

Hello! Staying proactive about your health isn’t optional —it
is essential for our community.🔍 Early Insight = Better Outcomes.
Has your healthcare provider suggested Manometry for you?

Manometry helps detect non-obvious changes before symptoms become
serious. Catching issues early means more treatment options, less invasive
interventions, and better overall health management. Testing gives your
healthcare team measurable data — not guesses — so they can monitor progression
and adjust treatment at the right time.

If you are a BNTM patient dealing with reflux, or unexplained
digestive symptoms, manometry testing can be a game-changer. Performed by a
gastroenterologist, manometry is a specialized test that measures how well the
muscles and nerves in your digestive tract are working and how well the lower
esophageal sphincter,(LES) opens and closes

Why It Matters for BNTM:

✅ Identifies swallowing disorders
(dysphagia)

✅ Diagnoses motility disorders
Conditions like esophageal spasm or ineffective motility

✅ Guides treatment
decisions-results help your care team choose the right medications, therapies,
or interventions.

✅ Prevents complications-
untreated motility issues can lead to malnutrition, aspiration, or worsening
reflux. Manometry isn’t just a test — it’s a roadmap for your healthcare
provider.

Hello! Staying proactive about your health isn’t optional —
it is essential for our community.🔍 Early Insight = Better
Outcomes. Has your healthcare provider suggested Manometry for you?

Manometry helps detect non-obvious changes before symptoms
become serious. Catching issues early means more treatment options, less
invasive interventions, and better overall health management. Testing gives
your healthcare team measurable data — not guesses — so they can monitor
progression and adjust treatment at the right time.

If you are a BNTM patient dealing with reflux, or
unexplained digestive symptoms, manometry testing can be a game-changer. Performed
by a gastroenterologist, manometry is a specialized test that measures how well
the muscles and nerves in your digestive tract are working and how well the lower esophageal sphincter
(LES) opens and closes

Why It Matters for BNTM:

✅ Identifies swallowing disorders
(dysphagia)

✅ Diagnoses motility disorders Conditions
like esophageal spasm or ineffective motility

✅ Guides treatment decisions-results
help your care team choose the right medications, therapies, or interventions.

✅ Prevents complications- untreated
motility issues can lead to malnutrition, aspiration, or worsening reflux. Manometry
isn’t just a test — it’s a roadmap for your healthcare provider.









Manometry and pH testing work together but measure different
things.

I'm off my Ciprofloxacin after two weeks, was meant to be on it for three, but my lower legs seemed to belong to someone else, and I misjudged a step while boarding a train and fell hard onto my knees.   No real damage done.   However, while I was on the Cipro and I can now confirm it was that because the side effects have stopped, I couldn't walk further than about 250m without feeling my lungs would explode, struggled up our driveway which probably has a 15 degree incline, had increased chest pain and then of course, the tingling lower legs.   Doctors said those type side effects were very rare so probably not the Cipro causing it.
Hmmm, so how do you 'make a fuss" about it so they take you more seriously.

I think I'm sensitive to a lot of the medications, hence I reckon I'd be one of the best clinical research guinea pigs!
All good now though - sort of...

Hello! Have you had an Endoscopy recently? Why Do Bronchiectasis & NTM Patients Get One? Think of an endoscopy as a tiny camera tour inside your body. A doctor gently guides a thin, flexible tube using a light and a camera through your mouth to examine your esophagus, stomach, and upper small intestine. It sounds frightening—but most people are comfortable and sleepy during the procedure, and it usually takes 15–30minutes. Why It Matters for Bronchiectasis & NTM Patient in BNTM lung disease, gastroesophageal reflux (GERD), and aspiration are major hidden contributors to lung damage. Many bronchiectasis/NTM patients have: Acid reflux, weak lower esophageal sphincter, hiatal hernia, and or delayed gastric emptying. Refluxed acid or food can travel up and be micro-aspirated into the lungs, worsening infection and inflammation. Endoscopy helps detect: Esophagitis, Barrett’s esophagus, Hiatal hernia, and Severe acid damage. Patients without classic heartburn may have “silent reflux.” Preventing Ongoing Lung Reinfection- Repeated aspiration can: Feed NTM organisms, worsen bronchiectasis, cause chronic cough, and reduce antibiotic effectiveness. Evaluating Medication Side-Effects: These can cause: Gastritis, Ulcers, Esophageal irritation. Endoscopy helps identify damage if patients report: Persistent nausea, Pain when swallowing, Upper abdominal pain. Nutritional Issues- Many BNTM patients struggle with: Low body weight, Poor appetite, Malabsorption. Endoscopy can check for: Gastric inflammation, Ulcers, Celiac disease, and structural issues affecting intake. Please let us know if you have any specific questions.

Hello! Have you had an Endoscopy?
What Is an Endoscopy — and Why Do Bronchiectasis & NTM Patients Get One? Think
of an endoscopy as a tiny camera tour inside your body. A doctor gently guides
a thin, flexible tube (with a light and a camera) through your mouth to examine
your esophagus, stomach, and upper small intestine. It sounds frightening—but
most people are comfortable and sleepy during the procedure, and it usually
takes 15–30 minutes. Why It Matters for Bronchiectasis & NTM Patient in
BNTM lung disease, gastroesophageal reflux (GERD), and aspiration are major
hidden contributors to lung damage.

1⃣ Detecting Silent
Reflux (GERD)

Many bronchiectasis/NTM
patients have:

• Acid reflux

• Weak lower esophageal sphincter

• Hiatal hernia

• Delayed gastric emptying

Refluxed acid or food can
travel up and be micro-aspirated into the lungs, worsening infection and
inflammation. Endoscopy helps detect:

• Esophagitis

• Barrett’s esophagus

• Hiatal hernia

• Severe acid damage. Even patients without classic
heartburn may have “silent reflux.”

2⃣ Preventing Ongoing
Lung Reinfection- Repeated aspiration can: Feed NTM organisms, worsen
bronchiectasis, cause chronic cough, reduce antibiotic effectiveness

3⃣ Evaluating
Medication Side Effects-These can cause: Gastritis, Ulcers, Esophageal
irritation

Endoscopy helps identify
damage if patients report: Persistent nausea, Pain when swallowing, Upper
abdominal pain

4⃣ Nutritional Issues- Many
BNTM patients struggle with:

• Low body weight, Poor appetite, Malabsorption

Endoscopy can check for: Gastric
inflammation, Ulcers, Celiac disease, and structural issues affecting intake

Maintaining weight is
critical for immune function in NTM disease.

5⃣ Pre-Surgical
Evaluation- If a patient is being considered for: Anti-reflux surgery (e.g.,
fundoplication), Lung resection, or advanced bronchiectasis management.

Hello! Have you had an Endoscopy recently? What Is an Endoscopy — and
Why Do Bronchiectasis & NTM Patients Get One? Think of an endoscopy as a
tiny camera tour inside your body. A doctor gently guides a thin, flexible tube
using a light and a camera through your mouth to examine your esophagus,
stomach, and upper small intestine. It sounds frightening—but most people are
comfortable and sleepy during the procedure, and it usually takes 15–30
minutes. Why It Matters for Bronchiectasis & NTM Patient in BNTM lung
disease, gastroesophageal reflux (GERD), and aspiration are major hidden
contributors to lung damage. Many bronchiectasis/NTM patients have: Acid reflux,
weak lower esophageal sphincter, hiatal hernia, and or delayed gastric emptying

Refluxed acid or food can travel up and be micro-aspirated
into the lungs, worsening infection and inflammation. Endoscopy helps detect:
Esophagitis, Barrett’s esophagus, Hiatal hernia, and Severe acid damage. Even
patients without classic heartburn may have “silent reflux.”Preventing Ongoing
Lung Reinfection- Repeated aspiration can: Feed NTM organisms, worsen
bronchiectasis, cause chronic cough, and reduce antibiotic effectiveness.  Evaluating Medication Side-Effects: These can cause:
Gastritis, Ulcers, Esophageal irritation. Endoscopy helps identify damage if patients
report: Persistent nausea, Pain when swallowing, Upper abdominal pain.  Nutritional Issues- Many BNTM patients struggle with: Low
body weight, Poor appetite, Malabsorption. Endoscopy can check for: Gastric
inflammation, Ulcers, Celiac disease, and structural issues affecting intake. Maintaining
weight is critical for immune function in NTM disease. Please let us know if
you have any specific questions.

Hello! Have you had an
Endoscopy? What Is an Endoscopy — and Why Do Bronchiectasis & NTM Patients
Get One? Think

of an endoscopy as a tiny
camera tour inside your body. A doctor gently guides a thin, flexible tube
(with a light and a camera) through your mouth to examine

your esophagus, stomach, and
upper small intestine. It sounds frightening—but most people are comfortable
and sleepy during the procedure, and it usually

takes 15–30 minutes. Why It
Matters for Bronchiectasis & NTM Patient in BNTM lung disease,
gastroesophageal reflux (GERD), and aspiration are major

hidden contributors to lung
damage.

Many bronchiectasis/NTM patients
have:

• Acid reflux

• Weak lower esophageal
sphincter

• Hiatal hernia

• Delayed gastric emptying

Refluxed acid or food can travel
up and be micro-aspirated into the lungs, worsening infection and

inflammation. Endoscopy helps
detect: Esophagitis, Barrett’s esophagus, Hiatal hernia and Severe acid damage.
Even patients without classic heartburn may have “silent reflux.”

Preventing Ongoing Lung
Reinfection- Repeated aspiration can: Feed NTM organisms, worsen bronchiectasis,
cause chronic cough, reduce antibiotic effectiveness

Evaluating Medication Side
Effects-These can cause: Gastritis, Ulcers, Esophageal irritation

Endoscopy helps identify damage
if patients report: Persistent nausea, Pain when swallowing, Upper abdominal
pain

Nutritional Issues- Many BNTM
patients struggle with: Low body weight, Poor appetite, Malabsorption

Endoscopy can check for:
Gastric inflammation, Ulcers, Celiac disease, and structural issues affecting
intake

Maintaining weight is critical
for immune function in NTM disease.

Please
let u know if you have any specific questions.

Hello! Have you had an Endoscopy?
What Is an Endoscopy — and Why Do Bronchiectasis & NTM Patients Get One? Think
of an endoscopy as a tiny camera tour inside your body. A doctor gently guides
a thin, flexible tube (with a light and a camera) through your mouth to examine
your esophagus, stomach, and upper small intestine. It sounds frightening—but
most people are comfortable and sleepy during the procedure, and it usually
takes 15–30 minutes. Why It Matters for Bronchiectasis & NTM Patient in
BNTM lung disease, gastroesophageal reflux (GERD), and aspiration are major
hidden contributors to lung damage.

1⃣ Detecting Silent
Reflux (GERD)

Many bronchiectasis/NTM
patients have:

• Acid reflux

• Weak lower esophageal sphincter

• Hiatal hernia

• Delayed gastric emptying

Refluxed acid or food can
travel up and be micro-aspirated into the lungs, worsening infection and
inflammation. Endoscopy helps detect:

• Esophagitis

• Barrett’s esophagus

• Hiatal hernia

• Severe acid damage. Even patients without classic
heartburn may have “silent reflux.”

2⃣ Preventing Ongoing
Lung Reinfection- Repeated aspiration can: Feed NTM organisms, worsen
bronchiectasis, cause chronic cough, reduce antibiotic effectiveness

3⃣ Evaluating
Medication Side Effects-These can cause: Gastritis, Ulcers, Esophageal
irritation

Endoscopy helps identify
damage if patients report: Persistent nausea, Pain when swallowing, Upper
abdominal pain

4⃣ Nutritional Issues- Many
BNTM patients struggle with:

• Low body weight, Poor appetite, Malabsorption

Endoscopy can check for: Gastric
inflammation, Ulcers, Celiac disease, and structural issues affecting intake

Maintaining weight is
critical for immune function in NTM disease.

5⃣ Pre-Surgical
Evaluation- If a patient is being considered for: Anti-reflux surgery (e.g.,
fundoplication), Lung resection, or advanced bronchiectasis management.

Hello All. I have recently been diagnosed with NTM/Bronchiectasis. I am 52 years old. I have not started treatment yet, and I’m very anxious. I had all the testing done last week ( sputum sample, blood tests, pre/post spirometer) I’m scheduled for a bronchoscopy and sweat test. I was diagnosed with high blood pressure a year ago. I am on Telmisartan and Hydrochlorothiazide.and propranolol. Even with medication, my BP is still high. I was rushed to the ER on Sunday because my left pupil was much larger than my right, which can be a sign of stroke or aneurysm. They did a CT of my brain and it’s clear. My BP was very high. I have also had a hard time sleeping. I don’t feel tired and when I try to sleep, I feel restless. I have reached out to my Infectious disease physician at National Jewish and have not received a call back. I’m wondering if my high blood pressure is because of the inflammation. Also, what’s the deal with my left eye? It feels irritated all the time. I saw an optometrist and he couldn’t see anything. I can’t seem to get any answers and I’m very frustrated. 

Has anyone had wedge resection to remove diseased part of lung where bronchiectasis is localized. I've had MAC 4 times and surgery is being suggested. I'm 72 and concerned about risks vs benefits and am curious how you fared, what healing time was and if symptoms of cough and shortness of breath improved drastically.

Hello! While many of us are safely inside during today’s blizzard in the northeast , there are extraordinary healthcare workers showing up—again and again—through the snow, the wind, and the long and challenging hours. I was stuck at a hospital for 3 days during a blizzard, while working as a nurse many years ago. To the nurses, respiratory therapists, physicians, techs, and support staff caring for patients with bronchiectasis and NTM… thank you. Your dedication ensures treatments continue, airways stay clear, and patients feel supported—even on the toughest days. If you’re a patient or caregiver, take a moment in a few days to send a message of gratitude to your healthcare provider who is working- It matters more than you know.Stay safe. Stay warm. 💙

While many of us are safely inside during today’s blizzard, there are extraordinary healthcare workers showing up—again and again—through the snow, the wind, and the long and challenging hours. I was stuck at a hospital for 3 days during a blizzard, while working as a nurse many years ago. To the nurses, respiratory therapists, physicians, techs, and support staff caring for patients with bronchiectasis and NTM… thank you. Your dedication ensures treatments continue, airways stay clear, and patients feel supported—even on the toughest days. If you’re a patient or caregiver, take a moment in a few days to send a message of gratitude to  your healthcare provider who is working- It matters more than you know.Stay safe. Stay warm. 💙

Anyone have any experience with brinsupri

Asking if certain states are better for living with Bronchiectasis in the lungs. I live in Maine and cold weather triggers minor to major flares. 

Hello! Are you a caregiver? There are support Groups- online
and in-person support groups provide a platform for caregivers to connect with
others facing similar challenges. These groups allow for sharing experiences, advice,
and emotional support. The link below includes information about our BNTM 360
Social Monthly Coffee Breaks, NTMir link for in-person local support groups,
and information about support through the BNTM Care Center Network:
https://www.bronchiectasisandntminitiative.org/Learn-More/Educational-Materials-Resources/NTM-Support-Groups

Educational Resources- this site, Bronchiectasis and NTM offer
educational materials in the menu above on the right-hand.

I have been a BNTM patient, a nurse, and a BNTM patient
advocate for a long time. I have firsthand experience as a caregiver of a
family member who has metastatic cancer for many years. I have witnessed a lot throughout
the years, and I realize how challenging caregiving can be at times. Please do
find some ways to take care of yourself as well. Too often, people ask about
the patient but fail to ask how the caregiver is doing emotionally and
physically. We are here to support you and to check in to see how you are
doing. If you are seeking assistance, please email us at contactus@bronchandntm.org or call
(833) 411-5864.

Support Groups- Online and in-person support groups provide
a platform for caregivers to connect with others facing similar challenges.
These groups allow for sharing experiences, advice, and emotional support. The
link below includes information about our BNTM 360 Social Monthly Coffee
Breaks, NTMir link for in-person local support groups, and information about
support through the BNTM Care Center Network: https://www.bronchiectasisandntminitiative.org/Learn-More/Educational-Materials-Resources/NTM-Support-Groups

Educational Resources- this site, Bronchiectasis and NTM offer
educational materials in the menu above on the right-hand.

I have been a BNTM patient, a nurse, and a BNTM patient
advocate for a long time. I have firsthand experience as a caregiver of a
family member who has metastatic cancer for many years. I have witnessed a lot throughout
the years, and I realize how challenging caregiving can be at times. Please do
find some ways to take care of yourself as well. Too often, people ask about
the patient but fail to ask how the caregiver is doing emotionally and
physically. We are here to support you and to check in to see how you are
doing. If you are seeking assistance, please email us at contactus@bronchandntm.org or call
(833) 411-5864.

Caregiver support for patients with bronchiectasis is essential for
managing these complex conditions. Caregivers play a crucial role in helping
patients navigate their treatment and daily challenges.

Support Groups- Online and in-person support groups provide a
platform for caregivers to connect with others facing similar challenges. These
groups allow for sharing experiences,

advice, and emotional
support. The link below includes information about our BNTM 360 Social Monthly
Coffee Breaks, NTMir link for in-person local support groups, and information
about support through the BNTM Care Center Network: https://www.bronchiectasisandntminitiative.org/Learn-More/Educational-Materials-Resources/NTM-Support-Groups. Educational Resources- this site, Bronchiectasis and NTM offer educational materials
in the menu above on the right-hand. I have been a BNTM patient, a
nurse, and a BNTM patient advocate for a long time. I have firsthand
experience as a caregiver of a family member who has metastatic cancer for many
years. BNTM is frequently a misunderstood, invisible disorder. BNTM patients face a wide range of issues- some
patients have minimal impact, while others are greatly affected. I have
witnessed a lot throughout the years, and I realize how challenging caregiving
can be at times. Please do find some ways to take care of yourself as well. Too
often, people ask about the patient but fail to ask how the caregiver is doing
emotionally and physically. Be mindful of your own health; do not ignore your
own well-being. Caregivers fare better with support; none of us are alone on an
island, nor should exist as a solo caretaker. We are here to support you and
to check in to see how you are doing. If you are seeking assistance, please
email us at contactus@bronchandntm.org

or call us at 833-411-5864.

🌿 Good Morning & Happy Sunday

Good morning, Bronch and NTM 360social 💙
For many areas, today may bring snow—or even blizzard conditions. If that’s you, this is a gentle reminder that it’s okay to slow things down and stay safe.

Changing plans to protect your breathing, your energy, and your well-being is not something to feel guilty about—it’s taking care of yourself.

Whether today means staying warm inside, adjusting plans, or simply taking things one breath at a time, that choice matters.

✨ What’s one small thing you’re doing today to take care of yourself?

NTM Info and Research will be hosting their 2026 NTM & Bronchiectasis Patient Conference on May 13 and 14 in Orlando, Florida. You can join the conference virtually or in-person. Registration is now open for this amazing opportunity to learn from experts and connect with other patients and caregivers. Explore new clinical trials, learn about the latest advances in treatments, and take advantage of additional support opportunities. Stay tuned for more details but sign up now - space is limited!
Hotel accommodations may be reserved within the official room block.
To register, go to: https://na.eventscloud.com/website/92695/

Caregiver support for bronchiectasis and NTM patients is essential for
managing these complex conditions. Caregivers play a crucial role in helping patients
navigate their treatment and daily challenges.

Support Groups- Online and
in-person support groups provide a platform for caregivers to connect with
others facing similar challenges. These groups allow for sharing experiences,
advice, and emotional support.
The link below includes information about our BNTM 360 Social Monthly Coffee
Breaks, NTMir link for in person local support
groups, and information about support through the BNTM Care Center Network: https://www.bronchiectasisandntminitiative.org/Learn-More/Educational-Materials-Resources/NTM-Support-Groups

Educational
Resources- this site, Bronchiectasis and NTM offers educational
materials in the menu above on the right hand side

Pulmonary
Rehabilitation Programs- Engaging in pulmonary rehabilitation can
benefit both patients and caregivers. These programs include exercise,
education, and support from these professionals.

I
have firsthand experience as a caregiver of a family member who has metastatic
cancer for many years. I have been a BNTM patient, a nurse, and a BNTM patient
advocate for a long time. I have witnessed a lot over the years, and I realize
how challenging caregiving can be at times. Please do find some ways to take
care of yourself as well. Too often, people ask about the patient but fail to ask how the caregiver is doing emotionally and physically. We are here
to support you and to check in to see how you are doing. If you are seeking
assistance, please email us at contactus@bronchandntm.org
or call (833) 411-5864

Happy National Caregivers Day! Today we celebrate individuals who dedicate their time to care for others, both in a personal and professional capacity.

To all the caregivers in our community: thank you for your tireless dedication to improving the lives of others! Your care makes a real and lasting impact.

Katie has a great topic to share about Reflux:

Living with bronchiectasis or NTM often comes with more than just lung symptoms. Reflux is something many people also deal with — even when it’s not obvious.

When stomach acid travels upward into the esophagus or throat, it can lead to heartburn, throat irritation, muscle tightness, and extra mucus. Some people never feel classic heartburn at all — this is often called “silent reflux.” If you notice frequent throat clearing, ongoing mucus, or a sore throat that just won’t quit, reflux could be playing a role.

The good news is that small, everyday habits can make a big difference. Here are a few lung-friendly reflux tips that may help:

Eat smaller meals more often and avoid overeating

Choose non-spicy foods

Chew slowly and thoroughly

Focus on lean proteins like chicken, turkey, and fish

Choose whole grains and fiber-rich foods to help absorb stomach contents

Enjoy non-citrus fruits

Opt for low-fat soups and dairy

Choose decaffeinated beverages and avoid peppermint or menthol products

Managing reflux isn’t just about comfort — it’s also about protecting your airways and supporting your lungs.

Do you struggle with reflux? What strategies have helped you the most?
Let’s share and support one another 💙

Hello!
Living with bronchiectasis or NTM? You’re not alone if reflux is part of your story,
too. Many people with chronic lung conditions also deal with acid

reflux.
When stomach acid travels upward into the esophagus and throat, it can trigger
heartburn,

throat
irritation, muscle tightness, and extra mucus. Some people don’t even feel classic
heartburn — this is often called “silent reflux.”

If
you notice frequent throat clearing, persistent mucus, or a sore throat that won’t
quit, reflux could be playing a role.

The
good news? Small daily habits can make a big difference. Here are simple, lung-friendly
reflux tips:



Eat
smaller meals more often — avoid overeating

Choose
non-spicy foods

Chew
slowly and thoroughly

Focus
on lean proteins like chicken, turkey, and fish

Choose
whole grains and fiber-rich foods to help absorb stomach contents

Enjoy
non-citrus fruits

Pick
low-fat soups and dairy options

Choose
decaffeinated beverages, avoid peppermint and menthol products

Managing
reflux isn’t just about comfort — it’s about protecting your airways and supporting
your lungs. Do you struggle with reflux? What strategies have helped you most?

Let’s
share and support each other 💙

Living
with bronchiectasis or NTM? You’re not alone if reflux is part of

your
story, too. Many people with chronic lung conditions also deal with acid
reflux. When stomach

acid
travels upward into the esophagus and throat, it can trigger heartburn,

throat
irritation, muscle tightness, and extra mucus. Some people don’t even

feel
classic heartburn — this is often called “silent reflux.”

If
you notice frequent throat clearing, persistent mucus, or a sore throat that
won’t

quit,
reflux could be playing a role.

The
good news? Small daily habits can make a big difference. Here are simple,

lung-friendly
reflux tips:




Eat smaller
meals more often — avoid overeating



Choose non-spicy
foods



Chew slowly and
thoroughly
Focus on lean
proteins like chicken, turkey, and fish
Choose whole
grains and fiber-rich foods to help absorb stomach contents
Enjoy non-citrus
fruits
Pick low-fat
soups and dairy options
Choose
decaffeinated beverages, avoid peppermint and menthol products




Managing
reflux isn’t just about comfort — it’s about protecting your airways and

supporting
your lungs. Do you struggle with reflux? What strategies have helped you most?
Let’s share and support each other 💙 

How to Fix Outlook Running Slow? – Tips and Tricks

https://helpemailtales.com/knowledgebase/fix-outlook-running-slow

Living with bronchiectasis or NTM? You’re not alone if reflux is part of
your story, too.

Many
people with chronic lung conditions also deal with acid reflux. When stomach
acid travels upward into the esophagus and throat, it can trigger heartburn,
throat irritation, muscle tightness, and extra mucus. Some people don’t even
feel classic heartburn — this is often called “silent reflux.”

If you
notice frequent throat clearing, persistent mucus, or a sore throat that won’t
quit, reflux could be playing a role.

The good
news? Small daily habits can make a big difference. Here are simple,
lung-friendly reflux tips:

• Eat
smaller meals more often — avoid overeating
• Choose non-spicy foods
• Chew slowly and thoroughly
• Focus on lean proteins like chicken, turkey, and fish
• Choose whole grains and fiber-rich foods to help absorb stomach contents
• Enjoy non-citrus fruits
• Pick low-fat soups and dairy options
• Choose decaffeinated, non-mint teas. Avoid peppermint and menthol (they can
relax the valve that keeps acid down).

Managing
reflux isn’t just about comfort — it’s about protecting your airways and
supporting your lungs.

Do you struggle with reflux? What
strategies have helped you most? Let’s share and support each other 💙 

Living with bronchiectasis or NTM? You’re not alone if reflux is part of
your story, too.

Many
people with chronic lung conditions also deal with acid reflux. When stomach
acid travels upward into the esophagus and throat, it can trigger heartburn,
throat irritation, muscle tightness, and extra mucus. Some people don’t even
feel classic heartburn — this is often called “silent reflux.”

If you
notice frequent throat clearing, persistent mucus, or a sore throat that won’t
quit, reflux could be playing a role.

The good
news? Small daily habits can make a big difference. Here are simple,
lung-friendly reflux tips:

• Eat
smaller meals more often — avoid overeating
• Choose non-spicy foods
• Chew slowly and thoroughly
• Focus on lean proteins like chicken, turkey, and fish
• Choose whole grains and fiber-rich foods to help absorb stomach contents
• Enjoy non-citrus fruits
• Pick low-fat soups and dairy options
• Choose decaffeinated, non-mint teas. Avoid peppermint and menthol (they can
relax the valve that keeps acid down).

Managing
reflux isn’t just about comfort — it’s about protecting your airways and
supporting your lungs.

Do you struggle with reflux? What
strategies have helped you most? Let’s share and support each other 💙

February is Black History Month- we celebrate great leaders like Mary Eliza Mahoney.  In 1879, Mary became the first Black licensed professional nurse in the United States — at a time when most nursing schools excluded Black students.

Her success challenged racist barriers in professional education and helped legitimize Black nurses in a segregated healthcare system.

She also co-founded the National Association of Colored Graduate Nurses — advocating for equity in nursing education and practice.

Access to nursing didn’t expand naturally. It expanded because leaders like Mahoney refused exclusion.

Hello group. Duly diagnosed after 6 month difficult differential decision making. I qualify for both these diagnoses. I am now in a three month period until my next CT scan and physician appointment. Learning about how little Medicine has to offer as far as patient support and prediction of disease progression. It would seem current education that it's up to me to maintain airway clearance at home with six month CT scans to see if I have Cherry Tree or hand and glove scans. Does that sound like anyone else's idea of future life? Some literature seems to say that I have excellent chance of living another five years, i'm currently 78 year old white male, with hx in 2016 of MRSA pneumonia.  (plan to phone patient ambassador line in future)

Newly diagnosed with Bronchiectasis or NTM? You’re not alone. 💙

A new diagnosis can bring a lot of emotions and questions, and it’s okay to take things one step at a time. Bronch & NTM 360social has dedicated spaces created especially for people who are just beginning this journey.

Within the community, you’ll find sections and discussions focused on:

Understanding your diagnosis – clear, patient-friendly information

Living your best with Bronchiectasis and NTM – everyday tips for routines, airway clearance, pacing, and self-care

Shared experiences – learning from others who truly understand

Encouragement and connection – support when you need it most

In addition to community support, we offer one-on-one help through our Bronchiectasis & NTM 360 Patient Ambassadors. Our Patient Ambassadors are real patients who understand what you’re going through and are available to listen, share resources, and help you find your footing. You can call toll-free (833) 411-5864, or you can email contactus@bronchandntm.org.

Whether you’re here to read quietly, ask your first question, or connect directly with someone who’s been in your shoes, you’re welcome here. Move at your own pace -- there’s no right or wrong way to begin.

✨ We’re really glad you found us, and we’re here to walk alongside you as you learn how to live your best with Bronchiectasis and NTM.

Here is a section that may be a good place to start:
https://www.bronchiectasisandntminitiative.org/Learn-More/I-am-a-Patient-or-Caregiver/Newly-Diagnosed

The University of Texas has a survey open
through this Sunday asking patients to help shed light on the factors
in a person's life that may impact their susceptibility to NTM lung
disease. Though it is a lengthy survey, the knowledge you share as a
patient can help shape research in the future. Please take some time
in the next few days to answer this survey. Click on this
link: https://www.surveymonkey.com/r/NTMsurvey

Jennifer
Honda and her team at the University of Texas have a survey open
through this Sunday asking patients to help shed light on the factors
in a person's life that may impact their susceptibility to NTM lung
disease. Though it is a lengthy survey, the knowledge you share as a
patient can help shape research in the future. Please take some time
in the next few days to answer this survey. Click on this
link: https://www.surveymonkey.com/r/NTMsurvey

Hello! Inflammatory markers
were discussed at our last BNTM Coffee Break. Below is a review of the two most
commonly used inflammation markers: the Erythrocyte Sedimentation Rate
(ESR) test, which measures the rate at which red blood cells settle at the
bottom of a test tube over a specified period. This rate increases with
inflammation. ESR values typically range from 0-22 mm/hr for men and 0-29 mm/hr
for women. Elevated ESR levels can indicate inflammation due to infections,
autoimmune diseases, and chronic inflammatory diseases.

CRP (C-reactive protein) is a
blood test that measures the level of C-reactive protein, which the liver
produces in response to inflammation. Normal CRP levels are generally less than
10 mg/L. High CRP levels indicate inflammation and can be associated with
infections, chronic inflammatory diseases, and other health conditions.
Elevated CRP levels require further diagnostic testing to determine the root
cause. It is a good practice to keep a paper copy of your labs or to view them on your patient portal to see trends over time. Please let us know if you
have any questions.