Discussions
Discussions
LorenW Check-In 02/24/2026
Hello All. I have recently been diagnosed with NTM/Bronchiectasis. I am 52 years old. I have not started treatment yet, and I’m very anxious. I had all the testing done last week ( sputum sample, blood tests, pre/post spirometer) I’m scheduled for a bronchoscopy and sweat test. I was diagnosed with high blood pressure a year ago. I am on Telmisartan and Hydrochlorothiazide.and propranolol. Even with medication, my BP is still high. I was rushed to the ER on Sunday because my left pupil was much larger than my right, which can be a sign of stroke or aneurysm. They did a CT of my brain and it’s clear. My BP was very high. I have also had a hard time sleeping. I don’t feel tired and when I try to sleep, I feel restless. I have reached out to my Infectious disease physician at National Jewish and have not received a call back. I’m wondering if my high blood pressure is because of the inflammation. Also, what’s the deal with my left eye? It feels irritated all the time. I saw an optometrist and he couldn’t see anything. I can’t seem to get any answers and I’m very frustrated.
Replies
Lauren,
Hello! I am so sorry that you are having a very challenging time. The stress of a new diagnosis in itself can raise one’s blood pressure. Inflammation in itself doesn’t necessarily raise someone’s blood pressure. Who is managing your blood pressure? Your PCP? It sounds like you need a higher dosage or an additional medication. This is something you cannot wait on.
Can you see a neurologist? This may take awhile to get an answer unless your PCP intervenes.
We have assistance available for you in many forms. In addition to the community support you receive here on BronchiectasisandNTM360, you can call one of our Patient Ambassadors directly by phone at (833) 411-5864. Our Ambassadors are real live patients with experiences similar to yours and understand your concerns. You can also email us at contactus@bronchandntm.org. Our Ambassadors can’t provide medical advice but may be able to assist you with additional information.
Hi LorenW, we're glad you're here, though it sounds like you have had a rough journey for sure. I hope you can find comfort and answers for what is happening with your blood pressure.
Thank you so much for the thoughtful recommendations. I will follow up with my PCP.
Loren,
You are most welcome! Some PCP offices have walk in hours- I hope you can get to communicate with your PCP soon in person, via phone or the portal. Make sure staff know that this is an urgent matter, and that you were in the ER for this last weekend. Please seek urgent care if your symptoms , blood pressure gets worse if you are not getting a response from your PCP in a timely manner. Your health is your priority.
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