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🌍 It’s World NTM Awareness Day! 💙

On Bronchiectasis and NTM 360social, we spend each day supporting, learning, and lifting one another--but today, we’re putting a special spotlight on raising awareness for NTM lung disease!

👉 A few things that might surprise you:
• NTM lung disease is becoming more common, especially in people with chronic lung conditions like bronchiectasis.
• Over 86,000 people in the U.S. are living with it--and many more may not even know they have it.
• People with bronchiectasis are 37 times more likely to develop NTM than those without.
• The earlier it’s caught, the better--awareness truly makes a difference.

If you’re living with NTM, caring for someone who is, or simply learning more--you’re helping move things forward. Every story shared, every question asked, every moment of support brings us closer to better care and understanding.

💬 If you'd like, share how you’re marking the day or give a shout-out to someone in this community who inspires you.

Let’s keep the momentum going--raising awareness, showing up for each other, and continuing the conversation! 💛

9 months ago
3

🌍 Today is World NTM Awareness Day! 💙

Here in our Bronchiectasis and NTM 360social community, every day is about lifting each other up, sharing our journeys, and advocating for better care. But today, we shine an even brighter light on NTM lung disease--because awareness can lead to earlier diagnosis, better treatment, and stronger support.

✅ Did you know?
🔹 Nontuberculous mycobacterial (NTM) lung disease is on the rise, especially in older adults and those with chronic lung conditions like bronchiectasis.
🔹 An estimated 86,000+ people in the U.S. are living with NTM lung disease--and many more may go undiagnosed.
🔹 People with bronchiectasis are 37 times more likely to develop NTM than the general population.
🔹 Yet despite this, awareness remains low--and that’s something we’re working hard to change!

Whether you’re living with NTM, supporting someone who is, or simply lending your voice--you’re helping drive change. Let’s keep raising awareness, asking questions, sharing stories, and pushing for a better future.


💬Drop a comment to tell us how you're marking the day or give a shoutout to someone who inspires you!

Here’s to all of us--standing strong, breathing better, and making our voices heard. 💛

9 months ago
K
Ksmiles123  posted a Check-In

August 4th,  NTM Awareness Day
NTM Info & Research recognizes the continuing increase of cases and the need for information and resources for those affected by this disease.With World NTM Awareness Day, we aim to raise awareness on the resources available to patients and increase early testing to avoid delayed diagnosis.
( NTM Information &Research) 
Please assist our community by increasing public awareness on NTM. Greater awareness increases funding for research, and the development of new medications and treatments. You can share educational materials on this site with health care professionals, your local representatives, friends and family.
You can also get involved in the Impact Advocacy program held in Washington, D.C. in March , 2026. Please email us at contactus@bronchandntm.org if you are interested.
NTM Awareness Day gives us a gift of HOPE that more is being done each and every day for this rare disease. Enjoy this special day! 

9 months ago
K
Ksmiles123  posted a Check-In

Hello! Tomorrow is World NTM Day! Below is a link to register for an event on Mindful Breathing and its Potential Benefits for Symptom Management: https://connect.ntminfo.org/events/event-description?CalendarEventKey=f5a29480-652d-457e-984f-019838457377&Home=%2fevents%2fcalendar

9 months ago
3

🎉Well, hey there, August -- you sure showed up fast!

Somehow we’ve landed in the heart of summer, where the humidity’s high and the air conditioners are MVPs. But no worries--we’ve got each other, and that’s what counts here on BronchandNTM360social!

Here are a few ways to make the most of the month with your fellow airway warriors:

🌬️ Airway clearance tips or routines that work for you? Share 'em! You never know who it might help!
🌞 Summertime survival mode: Let’s hear your tricks for staying cool, breathing easier, and avoiding the dreaded sticky air.
🎥 Need a breather (pun fully intended)? Our video library is full of helpful content you can watch in your comfy chair with your favorite fan blowing.
💬 Drop in and say hi! We love hearing from you—big updates, little wins, questions, or even just to chat!

Let’s make August a month of connection, support, and maybe a few laughs. We’re in this together, one breath (and one post) at a time!

https://www.bronchiectasisandntminitiative.org/Learn-More/Educational-Materials-Resources/Educational-Videos

9 months ago
N
Niamhy  posted a Check-In

My dear mum passed away on 5th June. I made it over to Ireland to be with her. She had dementia but was physically very healthy. She made it to 90! The journey and the grief is taking its toll.
I am using my new saline nebuliser and doing my airway clearance. I am starting Pulmonary Rehab tomorrow. Feeling nauseous these days wonder if the return of NTM is causing it? This feeling did coincide with me starting the saline nebuliser. Just wondering if this has happened to others. I had my ID appointment last week plan is to have a CT scan soon and treat the Abscessus which can be fast growing. I also have Mac. I am going to see Prof Marc Lipman who is a well know respiratory consultant. My consultants will have a team meeting with him too to discuss treatment going forward. Hope everyone is coping well with their symptoms. Have a lovely Sunday!

9 months ago
K
Ksmiles123  posted a Check-In

How are you doing today? The heat wave has finally taken a break in some areas. I hope you get to enjoy the outdoors today. 

9 months ago
K
Ksmiles123  posted a Check-In

Hello!  The month of August has arrived! July was pretty challenging for some patients with the high heat and humidity; hopefully, August will be a little kinder for those affected by these conditions.  We will kick off the month with World NTM Awareness Day on Monday, August 4th, and post NTM-relevant materials.  Educational NTM Awareness Day activities will be posted on this site throughout the month.  Additionally, we will review the basics of infection control precautions for individuals with BNTM. 

9 months ago
C
Community Announcements   commented on Share Your Story - Symptoms and Diagnosis   in category: Discussions
C
Community Announcements   commented on Share Your Story - Symptoms and Diagnosis   in category: Discussions

Martha,

Hello! Symptoms of different respiratory conditions overlap. More education and awareness is now being done on Bronchiectasis. I am glad that you now have the right diagnosis and will be treated properly. It is good that you have the vest and bronchodilators routine in place. There is alot of great information on Bronchiectasis in the menu above. Education empowers a patient to get the best care and to move forward. Katie

9 months ago
C
Community Announcements   commented on Share Your Story - Symptoms and Diagnosis   in category: Discussions

I had a cough for almost a year. When it became productive, I knew we needed to do something! My primary care doctor looked through my records and noted that a chest CT I had several years ago (for chest pain, which thankfully was just a strained muscle) mentioned bronchiectasis! He gave me an antibiotic, because the sputum was dark and recommended a prescription antacid, because he felt I had reflux. which I had no symptoms of. I already had a pulmonologist, with whom I checked in about this. I have had asthma for 30+ years, usually controlled by allergy meds, inhalers, only needing prednisone about once a year. He feels this new diagnosis resulted from the years of asthma. I did online research and found out about percussion vests, and their office was glad to approve that for me. So I use my percussion vest twice a day. Lately my pulmonologist recommended albuterol by nebulizer while using the vest. I haven't had an episode of dark mucus since that first one. I do cough, of course. but at least now I know why and that it's a good thing when it's productive!

9 months ago
J
Jenifer70   posted a Check-In

Has anyone ever gotten to the point where your body feels drained and malnutritioned , weak and exhuasted? If so how did you handle it.

9 months ago
a

Hello, I just joined this group as I have just been diagnosed with Bronchiectasis and NTM.  I had a series of 4 CT scans from 2005 to 2007.  All 4 of them suggested that I may have a MAC infection, the last one I had in 2007 also suggested that I may also have Bronchiectasis.  Does this suggest that I may have developed MAC first and that the MAC caused the Bronchiectasis? The CT scan and sputum cultures in 2025 finally confirms that I have both conditions.

9 months ago
3

🥵 Whew, it’s hot out there! If you're staying in to beat the heat, it might be a great time to check out some of the educational videos over on BronchandNTM360social.

They're short, easy to follow, and packed with helpful tips--whether you're learning about airway clearance, treatment options, or just looking for ways to make daily life a little easier. Perfect for patients and caregivers!


So grab a cold drink, find a comfy spot, and press play 🎬
👉https://www.bronchiectasisandntminitiative.org/Learn-More/Educational-Materials-Resources/Educational-Videos


Let us know which ones you find helpful--or what you'd like to see next!

9 months ago
K
Ksmiles123  posted a Check-In

Hello! How are you coping with the heatwave? It can be challenging to remain indoors throughout such high heat and humidity.  Are you up to watching an exercise video if you are unable to get out to exercise?
Below is a YouTube video on exercise for BNTM patients. This video was recently created in honor of World Bronchiectasis Day. https://m.youtube.com/watch?v=dmXYsXdwxnI

9 months ago
K

Below is an excellent webinar, designed for respiratory therapists. You can listen and learn a lot from this video if you are not a respiratory therapist. Elevating Awareness of Bronchiectasis
Watch on YouTube: https://www.youtube.com/watch?v=G0RBqnIu-tw&t=1s
Get the latest information on diagnosis, treatments, and ongoing care strategies for bronchiectasis.
Let us know if you have any specific questions,


9 months ago
K
Ksmiles123  posted a Check-In

Hello! Below is a friendly reminder of our upcoming BNTM 360 social Coffee Break on August 13th, 2025@3pm, EST. We hope that you will be able to join us. We strongly encourage you to watch the excellent video in the link below on Airway Clearance/ Coping with Airway Mucus. Please send any questions on the video by August 12th to contactus@bronchandntm.org. 
Looking forward to seeing you soon!



https://www.bronchiectasisandntminitiative.org/BronchandNTM360social/Community-Discussions/Community-Events/August-2025-BronchandNTM360social-Coffee-Break-1

9 months ago
K
Ksmiles123  posted a Check-In

Hello! Our next BronchandNTM360socialCoffee Break will be Wednesday, August 13, 2025, @ 3 pm EDT. Dr. Pamela McShane will join us during our coffee break to discuss airway clearance. Dr. McShane is a pulmonologist and lung health expert who is returning to work at the National Institutes of Health (NIH) with the National Heart, Lung, and Blood Institute (NHLBI). Dr. McShane produced an excellent airway clearance webinar last year, cosponsored by NTMir and Running On Air as part of World Bronchiectasis Day. We will start our discussion based on the key points Dr McShane made in the video, 
Airway Clearance by Dr. Pamela McShane, Coping with Airway Mucus.
We strongly encourage you to watch before our August meeting, take notes, and send any questions on the video ahead of the event to contactus@bronchandntm.org.

We will open the call fifteen minutes early, so please join us if you wish to speak casually with us or other community members. Any health-related discussion will be held until the start of the meeting. The meeting registration link is here: BronchandNTM360social Coffee Break Registration . 
Looking forward to seeing you on August 13th!

9 months ago
K
Ksmiles123  posted a Check-In

Hello! Wearing the right clothing during a heatwave can certainly assist you to endure extreme temperatures. The link below reviews the best clothing to wear during extreme heat conditions: https://www.bbc.com/future/article/20230802-what-is-the-best-clothing-to-keep-you-cool

9 months ago
K
Ksmiles123  posted a Check-In

Hello! Are you staying well hydrated throughout this heat wave?
Below is a link on the different types of beverages to keep you well hydrated, entitled, Water, Hydration and Health from nutrition.gov
https://www.nutrition.gov/topics/basic-nutrition/water-hydration-and-health

9 months ago
3

Hey Bronch and NTM 360social friends! 👋

We’re heading into another week of serious heat, so here’s your friendly nudge to take it easy and put your health first:

💧 Keep the water flowing--hydration helps keep mucus moving
🌬️ Stay cool--whatever your favorite method is, now’s the time to use it
🫁 Don’t skip those airway clearance routines (even if your couch is calling)
🛑 And if your body’s asking for rest? Listen to it. You’ve earned it.

Summer’s halfway over (already?!)--let’s celebrate the wins and the little joys. Snap a pic of your chill-out space, your sunshine buddy, or anything that helps you feel your best--we’d love to see it!


Pop in during the week to say hi and let us know how you're doing. We may all be riding our own waves, but we’re floating in the same ocean--and cheering each other on. 🌊💙

9 months ago
K

It is good to have a tool for guidance in the management of NTM Lung Disease. The link below provides information and the tool that you can print out and use regularly. https://www.bronchiectasisandntminitiative.org/Portals/0/DownloadsLibrary/Files/NTM_Management_Tool.pdf

9 months ago
m
marsrocket  posted a Check-In

Mannkind is currently recruiting patients for a Phase 3 clinical trial of inhaled clofazimine for the treatment of MAC, at several locations throughout the United States. None near me, unfortunately. Here's some info on the study and a testing location map, if you are interested in participating. 

https://www.icon-1study.com/

9 months ago
B

ARINA-1 (nebulized treatment for bronchiectasis) UPDATE


Many people have been asking about ARINA-1, a promising proprietary nebulized solution in development for respiratory diseases. 


What is ARINA-1? 


ARINA-1 is an investigational, at-home nebulized therapy designed to:


*Thin mucus to improve airway clearance
*Reduce airway inflammation without the side effects of steroids
*Inhibit harmful bacteria, including those linked to recurrent infections


In 2024, Renovion completed a randomized, phase 2, double-blind, placebo-controlled study evaluating the safety and efficacy of ARINA-1 in people with non-cystic fibrosis bronchiectasis (NCFBE). Early clinical results suggest ARINA-1 begins working within days and delivers promising outcomes. 


If approved, it could become the first non-antibiotic nebulized therapy specifically for bronchiectasis—addressing a critical unmet need for patients.


I’ll continue to follow ARINA-1’s development and will share updates as more information becomes available.


Warm regards,
Linda Esposito

9 months ago
K
Ksmiles123  posted a Check-In

Hello! In preparation for World NTM Awareness Day- would you be interested in sharing videos on NTM with friends, colleagues, family? Educating others on this disease will help them to understand your concerns and challenges.  Increasing public awareness can assist in getting more research funding for NTM disease. The link below includes several videos: https://www.bronchiectasisandntminitiative.org/Learn-More/I-am-a-Patient-or-Caregiver/What-Is-NTM

9 months ago
3

FDA Seeks Older Adults for Panel Discussion on Medical Device Clinical Studies

Are you 60 or older? Have you had any experience with medical device clinical studies over the past 5 years?

If so, the FDA's Center for Devices and Radiological Health (CDRH) is looking for individuals to share their experiences during a virtual town hall for CDRH employees! The town hall will take place on Thursday, September 4th, 2025, from 11AM – 1PM EST.

What’s this event about?
The FDA wants to spotlight the voices of older adults to better understand their experiences with medical device clinical studies, including studies for condition-specific devices.

Who is the FDA seeking to participate?
The FDA is looking for participants 60 years of age or older who, over the last 5 years:

· Joined and completed a medical device clinical study
· Started a study, but didn’t finish
· Were invited to participate in a study, but chose not to enroll
· Wanted to participate in a study, but couldn’t enroll

What to expect if selected:
Participating in the town hall is a 5-hour commitment, including preparation time and the 2-hour virtual town hall event.

During the event, you will:
· Share your experience with medical devices and clinical studies
· Help the FDA understand barriers to participation of older adults
· Offer suggestions to improve access and participation
· Answer questions and engage with FDA attendees

If you or someone you know meets the criteria, please consider reaching out and being part of this important discussion. Your voice can help shape the future of medical research and inclusion.

📧 Interested in participating?
Email Anaja Pinnock-Williams at anaja.pinnock-williams@fda.hhs.gov

Please note: This opportunity will close after Friday, July 25, 2025 

9 months ago
K
Ksmiles123  posted a Check-In

With World NTM Awareness Day around the corner, August 4th, I thought you may want to share the NTM Patient Information and Education Sheet below with friends and family: https://www.bronchiectasisandntminitiative.org/Portals/0/DownloadsLibrary/Files/NTM_Information_Sheet.pdf
Educating others on NTM enables them to better understand what you are dealing with. Increasing public awareness about NTM increases the chance of greater research on this disease . Please let us know if you have any questions. 

9 months ago
D
DawnEllen  posted a Check-In

We finally have a dry season, the wind is in the south so the humidity is down to something reasonable (65-70%) instead of the insane 90% we get in the rainy season.  Breathing is much easier, & now I'm down to 1 litre/min on the oxygen concentrator, my doctor says I should switch it off as much as possible.  It's scary, you can get to be emotionally dependant on supplemental oxygen & stopping it for any length of time is frightening, but I'm carefully monitoring my oxygen levels & looking forward to the day I won't need to trail a long hose behind me.

9 months ago
B

ARINA-1 (nebulized treatment for bronchiectasis) UPDATE


Many people have been asking about ARINA-1, a promising proprietary nebulized solution in development for respiratory diseases. To get the latest, I reached out to Dan Copeland, CEO of Renovion, Inc., the company leading this innovative work.


What is ARINA-1?ARINA-1 is an investigational, at-home nebulized therapy designed to:


*Thin mucus to improve airway clearance

*Reduce airway inflammation without the side effects of steroids

*Inhibit harmful bacteria, including those linked to recurrent infections 


In 2024, Renovion completed a randomized, phase 2, double-blind, placebo-controlled study evaluating the safety and efficacy of ARINA-1 in people with non-cystic fibrosis bronchiectasis (NCFBE).Early clinical results suggest ARINA-1 begins working within days and delivers promising outcomes. If approved, it could become the first non-antibiotic nebulized therapy specifically for bronchiectasis—addressing a critical unmet need for patients.
An Update from Dan Copeland
“Renovion is currently in discussions with the FDA about the importance of treating bronchiectasis symptoms early—before they progress into exacerbations.The company is preparing for a Phase 3 clinical trial, focusing on individuals with mild to moderate NCFBE. The goal: to offer a first-line therapy that effectively manages daily symptoms and helps slow disease progression.”I’ll continue to follow ARINA-1’s development and will share updates as more information becomes available.


Warm regards,
Linda Esposito

9 months ago
3

🌞 Hey Bronch and NTM friends! 🌞

Just popping in for a mid-week check-in--how’s everyone doing out there in this summer heat and humidity? If you’re feeling like you’re breathing soup and moving through molasses, you’re definitely not the only one. 😅

This kind of weather can be extra rough when you're already juggling airway clearance, treatments, and all the energy it takes just to get through the day. So here’s your gentle nudge from me to:

💧 Drink your water (I know, I know--you’ve heard it a hundred times, but it really does help!)
🌬 Take breaks when you need to--especially if you’re running low on steam
😌 Be kind to yourself if it’s just one of those tougher days

Whether you're crushing your to-do list or simply getting through the day one breath at a time, that counts. Seriously.

And if you’ve found a little trick that helps--something that makes airway clearance easier, keeps you cool, or just helps lighten the mood--share it below! You never know who might really need that tip today.

Sending cool thoughts and big support your way!
—Coach Brandon

9 months ago
m
marsrocket  posted a Check-In

Speaking of humor and honoring Paul's memory...

https://resources.healthgrades.com/pro/pulmonology-jokes

9 months ago
K
Ksmiles123  posted a Check-In

World NTM Awareness Day is coming up soon, on August 4th. The link below reviews the history of this great day and lists the upcoming webinars in honor of World NTM Awareness Day: https://worldntmday.org/

9 months ago
m
marsrocket  posted a Check-In

Lately I have been using music therapy to boost my mood and calm my worries about health concerns and stinkin' mortality. In the morning between coughing storms I sing uplifting songs like Sunshine on My Shoulders or Here Comes the Sun. Besides cheering me up, singing loudly appears to help free up mucus in my throat or upper airways. I also recently purchased a kalimba thumb piano. Haven't learned any songs yet, but the sounds are definitely soothing. Most of them sell for under $25. Do you sing any songs out loud or play an instrument? If so, let's start a band, ha ha. 

9 months ago
N
Niamhy  posted a Check-In

I have just started using my nebuliser using 3% sodium chloride. It is making me feel nauseous. Has anyone ever experienced this side effect. I am only doing it once a day now in the evening but the adverse syptoms can linger. It does help me to cough up more mucus which is good. 

9 months ago
3

Hi friends--wishing you a peaceful and gentle Sunday. 💙

Living with bronchiectasis or NTM can bring its fair share of ups and downs, so I hope today gives you a chance to slow down, breathe a little easier, and just be. Rest is more than okay--it’s necessary. Healing happens not just through medications and treatments, but also through moments of calm, connection, and care.

However you spend your day, I hope it brings comfort and a reminder that you're never alone in this! We’re in this together--one breath, one step, one Sunday at a time.
 

9 months ago
K
Ksmiles123  posted a Check-In

Hello!  Are you familiar with the BNTM Research Registry? The link below reviews the history and the goals of the BNTM Registry: https://www.bronchiectasisandntminitiative.org/Research/Registry/Bronchiectasis-and-NTM-Research-Registry

9 months ago
3

FDA Seeks Older Adults for Panel Discussion on Medical Device Clinical Studies

Are you 65 or older? Have you had any experience with medical device clinical studies over the past 5 years?

If so, the FDA's Center for Devices and Radiological Health (CDRH) is looking for individuals to share their experiences during a virtual town hall for CDRH employees! The town hall will take place on Thursday, September 4th, 2025, 11AM – 1PM EST.

What’s this event about?

The FDA wants to spotlight the voices of older adults to better understand older adults’ experiences with medical device clinical studies, including studies for [condition specific] devices.

Who is the FDA seeking to participate?

The FDA is looking for participants 65 years of age or older who, over the last 5 years,:

· Joined and completed a medical device clinical study,

· Started a study, but didn’t finish,

· Were invited to participate in a study, but chose not to enroll, or

· Wanted to participate in a study, but couldn’t enroll.

What to expect if selected?

Participating in the town hall is a 5-hour commitment, including preparation time and the 2-hour virtual town hall event.

During the event, you will:

· Share your experience with medical devices and clinical studies

· Help the FDA understand barriers to participation of older adults in medical device clinical studies

· Offer suggestions to help improve access and participation of older adults in medical device clinical studies

· Answer questions and engage with FDA attendees


Interested in participating? Please email Anaja Pinnock-Williams at anaja.pinnock-williams@fda.hhs.gov before Friday, July 25, 2025.


anaja.pinnock-williams@fda.hhs.gov

9 months ago
K
Ksmiles123  posted a Check-In

Hello! Below are a few completed research studies. It is a good practice to get familiar with how research studies are set up. They are now writing results of research studies in layman’s terms so all can understand the results. https://www.bronchiectasisandntminitiative.org/Research/Research/Completed-Studies-Results-and-Updates

9 months ago
J
Jenifer70   posted a Check-In

New here. Been diagnosed with NTM since March. These meds do not make it easy. How long do you feel horrible for?

9 months ago
m
marsrocket  posted a Check-In

Due to worsening lung problems, as well as other concerns such as Parkinson's and dysphagia, one of my lung doctors suggested that I consider palliative care, which focuses on symptom relief, and they provide other kinds of support such as coordinating treatments with my care team, help with mental health issues, and more. It's different from hospice in that services are provided in hospitals or as an outpatient, and curative type therapies and treatments continue. Lung disease is one of the ailments that qualifies for palliative care. Apparently, it's usually covered by public and private insurance plans. Something I'm considering. Here's more info on palliative care, including how to get it where you live. 
https://getpalliativecare.org/

9 months ago
3

📚 Have you checked out our Educational Downloads Library yet?

If you're newly diagnosed with bronchiectasis -- or you've been living with it for a while -- we've got a resource you’ll definitely want to check out!

One of our favorites is the “All About Bronchiectasis” booklet. It’s packed with trusted info and written in a way that actually makes sense (no medical degree required!). Whether you're trying to wrap your head around the basics or looking for tips on day-to-day management, it's a great go-to!

💬 Think of it as a roadmap to understanding bronchiectasis -- from symptoms and treatments to airway clearance and self-advocacy.

You can find it in our Educational Downloads Library, along with lots of other helpful guides. And yes -- it’s all free and made just for our community. 🙌

Check it out here:  https://www.bronchiectasisandntminitiative.org/Learn-More/Educational-Materials-Resources/Downloads-Library#AllAboutBronch

Already read it? Let us know what you thought!

9 months ago
K
Ksmiles123  posted a Check-In

Hello! Below is the BNTM Association link for Actively Recruiting / Ongoing Clinical Trials for BNTM patients: https://www.bronchiectasisandntminitiative.org/Research/Research/Actively-Recruiting-Ongoing-Studies

9 months ago
d
debe7  posted a Check-In

Anyone using a nebulizer that can help me figure out what I am doing wrong. Mist is coming out but the medication hasn’t gone down hardly at all after an hour of use. 
Thanks

9 months ago
K
Ksmiles123  posted a Check-In

Hello! Below is a blog article, entitled Let’s Talk About Research , written by Christina Hunt, BS, RRT, Senior Director of Education and Care Delivery, BNTM Association: https://www.bronchiectasisandntminitiative.org/BronchandNTM360social/Community-Discussions/Blog/Article/187/Let-s-Talk-About-Research

9 months ago
K

It has been extremely warm on the East Coast over the past week. Weather reports can be confusing for many people. Humidity numbers may not be too high but the dew points are high. The How to Geek link below differentiates the two terms, humidity and dew point to explain how it really feels. https://www.howtogeek.com/733421/forget-humidity-dew-point-is-how-it-really-feels-outside/

9 months ago
3

🌞 Happy Sunday, Bronch and NTM 360social Friends! 🌞

Just popping in to wish everyone a wonderful Sunday!

I hope your day is filled with easy breathing, plenty of smiles, and maybe a little something special that makes you feel good--whether that’s relaxing with a good book, enjoying some sunshine, or tackling your airway clearance like a superstar.


Let’s keep moving forward together!


9 months ago
B

Are you a man living with bronchiectasis?

Struggling with infections like NTM/MAC?

Bronchiectasis & NTM Info and Research is excited to launch a brand-new support group just for men — a space to connect, share, and learn from others who understand what you’re going through.

Caregivers are always welcome, too! First meeting AUGUST 4th‼‼

Have questions? Ready to join?
📧 Contact Trisha at ntmmail@ntminfo.org — she would love to hear from you!⭐⭐

(Please note this support group is for men with bronchiectasis, regardless of whether or not they have NTM)


Warm regards,
Linda Esposito
Volunteer Patient Ambassador

9 months ago
C

Below is a video with Michelle McDonald, Registered Dietitian National Jewish Health.
https://m.youtube.com/watch?v=30L2Ha4W_Nk

9 months ago
C

KellyAnn,

You are most welcome. Getting a Registered Dietitian is also recommended for those who are concerned with weight. You can get a referral from your physician or pulmonologist.

9 months ago
D
DawnEllen  posted a Check-In

Since completing a pulmonary rehab course I have been doing really well, I'm finally down to just 1 litre/minute oxygen, and have been able to go for over an hour without it entirely, so I'm hopeful I will be able to get off it eventually.
Its made a huge difference to my life, 6 months ago I could barely walk for 2 mins. but now I can walk for more than half an hour, and all without my oxygen dropping.  I also do weight training, & now I'm more active, my BMR has increased - goody I can eat more!
Still on the antibiotics, but I've managed to stop using atrovent, & now just use the ventolin in the nebuliser 3 times/day. 

9 months ago

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