Discussions
Discussions
NTM and macrolide resistance
Hi,
Recently found out I have MAC again (successfully treated m.avium species 10 years ago) but now have intracellular species and seems to be macrolide resistant. I have been looking at some very negative outcomes online for this scenario and wondering is there is anyone else out these who is experiencing this and what to expect moving forward for treatment plan .
Replies
Hi barnco24, I'm sorry to read you have MAC again. We have ways to help you in many forms. In addition to the community support you receive here on BronchandNTM360social, you can call one of our Patient Ambassadors directly toll-free at (833) 411-5864. Our Ambassadors are patients and caregivers with experiences similar to yours and understand what you are going through. You can also email us at contactus@bronchandntm.org to get more information. Although our Ambassadors can’t provide direct medical advice but can assist you with additional information and resources. You're not alone, and we're glad you're here!
Barnco,
Hello! I am sorry to read about your reoccurrence after an extended period of time. Reoccurrence is very common in the NTM community. Do not believe everything that you read online. Do you have access to a top doctor, one of the BNTM Care Center Networks?
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