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Living w MAC without treatment

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7 627
J

I have heart issues while on treatment. I'm considering stopping treatment. Anybody here just watching and keeping an eye on MAC with out treatment?


Latest Activity: November 1, 2025
6
7 Replies

Replies

K

JulieAnn,

Hello! Some antibiotics can affect your heart rhythm. Doctors usually order EKG’s while on these medications.

This is a question for your pulmonologist and cardiologist to discuss. Your doctors will determine if the potential benefits of your current medications outweigh the risks involved.


Latest Activity: June 14, 2025
1
J

Hi JulieAnn,

Yes, watchful waiting is an option to consider with your health care provider's supervision. This is not the same as ignoring the issue. Typically, under watchful waiting, you continue a full course of daily airway clearance exercises, periodic sputum samples, ct scans, and check-ups to monitor the infection's symptoms, including cough, fatigue, weight loss, night sweats, etc.

Latest Activity: June 14, 2025
4
J

Yes, I am currently on a course of watchful waiting.

Latest Activity: June 14, 2025
4

Comments

Hello I have questions about the watching and waiting. I  wonder when the decision to treat is made at what point..I feel fine and the treatment was messing w my heart. They say it's really slow so what does that look like 10 15 yrs before treatment. 

Latest Activity: June 19, 2025
1

Julie Ann, Hello! I am so glad that you are feeling well and are only experiencing mild symptoms. Doctors can’t predict exactly what the future is , such as a 10-to-15-year timeframe for patients. As John mentioned earlier, regular scheduled pulmonologist appointments, sputum samples, your history/ assessment, and CT Scans will determine how your lungs are doing.   Regular airway clearance and education on preventive measures from materials on this site are most beneficial.   

Latest Activity: June 19, 2025
J

I'm having issues w my medicine it's causing me heart problems. So I'm considering just watching and waiting. My symptoms are mild. I'd rather not have a heart attack. I'll see what my dr says. I'm thankful for this site and all the imput and encouragement.

Latest Activity: June 16, 2025
2
K

JulieAnn,


You are most welcome. We are here to support you on your journey. I am glad that your symptoms are mild. I understand your concerns. Please keep us posted after your doctor visits.

Latest Activity: June 16, 2025
5
R

I am approaching the third year of watchful waiting when I was told I needed to treat the NTM with three antibotics for two years, and, after much research, decided not to do it. I do ACT, nebulizing, and exercise. I am 83 years old and on 24/7 oxygen, but manage to get out and about a few times a week.

Latest Activity: November 1, 2025
3

Comments

Welcome Ronbo......Good job managing your condition. Good luck going forward

Latest Activity: November 1, 2025
K

Ronbo,

Hello! Thank you for sharing your uplifting news. Watchful waiting , not taking multiple antibiotics is a great option for some patients. I am so glad that airway clearance, nebulizing , exercise and oxygen are enabling you to continue to be active, getting out and about a few times a week.

Have a wonderful day! Katie

Latest Activity: November 1, 2025
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It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.

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