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Support Check-In 12/18/2025

In: Check-In
6 2
S

New to group.  I am awaiting results of the NTM 2 v 3 study.  I read where data was collected in Oct. so ?
Has anyone tried to work a new job with the triple toxic treatment?  How did you fare?  
I have a job offer coming in today and freaking out since I meet ID for treatment proposal in 11 days.
Thanks for sharing your work situation on NTM treatment...also Ototoxicity with Amikacin...anyone experiencing?

Latest Activity: December 18, 2025
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6 Replies

Replies

K

Hello! Welcome to the community. I will update you on the trial results as soon as I receive an update from a colleague. 
Personally , I don’t know how comfortable I would feel starting a new job with the uncertainty of how I will feel on the antibiotics. Some people fare well, others experience greater challenges. Some people do experience ototoxicity, others do not. Can they hold the job for you for a couple of months or is it a job/ career that needs an immediate fill? 
You may not want to add additional stress of a new job as you start your treatment plan. 
We have assistance available for you in many forms. In addition to the community support you receive here on BronchiectasisandNTM360, you can call one of our Patient Ambassadors directly by phone at (833) 411-5864. Our Ambassadors are real live patients with experiences similar to yours and understand questions that you may have.  You can also email us at contactus@bronchandntm.org to get more information about medications . Our Ambassadors can’t provide medical advice but may be able to assist you with additional information and resources.
I realize that this decision is a difficult one. We are here to support you, you are not alone on this journey. 

Latest Activity: December 18, 2025
6
K

Support,
Research takes quite some time from the starting point to completion. It will be awhile before this research affects any decision making in the clinical setting. NTM 2vs.3 researchers presented preliminary results at the conference in Portland in early November. My understanding is they are planning to present the first official round of results at American Thoracic Society meeting 2026 in May. 

Latest Activity: December 18, 2025
6
S

Yes, I read May earlier also...double checked the ClinicalTrials.org and nothing...my hearing and smell are two of my best senses...It is tough there are not better drugs out there since I read this is on the rise 8% annually. The job can't wait...the organization is slow to hire, govt and not sure of start date yet. I live alone and moved to current residence for a horrible job I left in 2 months...had 2 other job offers for part time which is what I was looking for and there was black mold around the a/c vents in the lobby and the other offer's building was under mold remediation...so ... It is a challenge now with energy waxing and waning...with no meds...so help us all. Thank you for writing in.

Latest Activity: December 18, 2025
7
K

Support,
Hello! I feel your frustrations- I have been there. More research is now being conducted on BNTM than ever before; itis challenging for us to wait the long period of time for drugs to be developed and approved. 
You absolutely did the right thing by staying away from employment in buildings with mold. I experienced a mold issue and it sure wasn’t pleasant. 
If the job can’t wait- then it up to you to take a chance or continue to look for a different part time job since your energy levels fluctuate. Only you know the answer to this question based on personal choice, financial situation, emergency funds, etc. Do consider calling the number above if you are interested in speaking with a patient ambassador. Hold onto HOPE that somehow things will work out. 

Latest Activity: December 18, 2025
6
S

In 2018 I had hemoptysis for 5 days and finally went to the hospital.  I had been working in a clinic with black/mildew for 4 weeks 4.5 days a week and the ER just did a chest X ray and basics.  I said I want a CT - I have bronchiectasis and want to rule out cancer...so they said to continue the treatment I had put myself on (I'm a provider)...I wonder if the past experiences and a fracture remediation 2 years ago brought about a cytokine storm to the point my body couldn't handle the normal environmental NTM because it has been about 15 months or so before I will be getting treated, and that is thanks to my persistence.  Job is to start Feb 23 or thereabouts...just got the offer and to serve our Veterans for Primary Care...I hope I can handle...will know more end of month of treatment plan.  

Latest Activity: December 20, 2025
7
K

Mold issues can certainly impact your immune system, leading to higher chances of getting sicker. I am sure you are aware if all of this being a provider. However, I have been a nurse for a long time and I feel that when you are in the “ thick of a medical crisis “, we don’t always see the whole picture clearly.
My doctor referred to my mold issue as an immune system attack, cytokines, etc.
I am glad that you are persevering and continuing to ask for the assistance and diagnostic tests that you deserve and need.
I am glad that you have some time to figure out the job situation since it doesn’t start until February 23rd.
I wish you the best as you approach the end of the month and get a treatment plan in place. Please review materials in the menu above, blog articles, specific podcasts so you are fully prepared and empowered to discuss your treatment plan. One day at a time for now- I realize how overwhelming this experience can be. We are here for you. 

Latest Activity: December 20, 2025
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It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.

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