Discussions
Discussions
Niamhy Check-In 12/28/2025
Hi there, just wondering if anyone has had symptoms of severe nausea with MAC or M Abcsessus? I have had this on and off for a few months, but now I am suffering on a daily basis. I am not on antibiotics at the moment. I just take Lansoprazole in the morning for my GERD and Vesicare before going to sleep for the kidney damage caused by the big 3. I do regular airway clearance, eat as well as I can and exercise when I feel well enough to do so. I take Ondansetron for the nausea - it worked so well for the first few days but now it appears not to be. Perhaps the Abcsessus is taking hold and causing all this. The nausea goes in the afternoon but I am unable to do anything in the morning. Would love to hear from anyone who has suffered from this problem.
Replies
Niamhy,
Sorry to read about your current condition. I have not experienced this type of nausea. Do you see a gastroenterologist on a regular basis? Have you had a EGD/ endoscopy recently? Do you see a nephrologist for your kidney issues?
Katie
Thank you for your reply. I had an endoscope in 2022 which diagnosed my GERD. I am on medication for this. I had a recent appointment with the nephrologist. I am just wondering if it could be anxiety related. I worry about the fact that my NTM has returned and that watchful waiting will come to an end. The thoughts of going back on antibiotics worries me. I know that everyone is different and I was on them before and got through it. I had a year of feeling good again. I have an appointment with my GP this week so hopefully they can shed some light on the symptoms and possible causes. You are always so positive. Thank you.
Niamhy,
Hello! Thank you for your positive words. I am glad that you have seen the specialists to rule out the possible cause of nausea . Do you have a hiatal hernia? Sometimes, doctors make light of this. This diagnosis can be seen on a Endoscopy or a Chest Cat San.
Yes, anxiety can come into the picture but not many people complain of major nausea due to anxiety.
It is very challenging to have to go on multiple antibiotics again. I hope that your appointment with your GP goes well and you get a plan in place. Uncertainty about treatment is very anxiety producing . We are here for you.
I have a 2cm hiatal hernia it only affects me if I bend down to put my socks on instead of sitting on the bed. After my endoscope the person doing it said that it was a small hernia and not worth having an operation.
The GP I saw was lovely and said that I had a lot going on and feelings of anxiety could be a cause. She told me to take the 4mg Ondansetron before drinking coffee/green tea in the morning. I did that today and I was fine. I also need to stop doing too many things - learning to pace myself has been a tricky hurdle for me.
It has been a tough Christmas too without my mum. I have avoided going to friends etc as many of them have had flu and bad colds. They are very understanding however I do miss the social interaction. My husband has kept me going, he has been my rock. Hopefully 2026 will prove to be positive. Thank you once again for your wise words. This is a bumpy journey for us all.
Niamhy,
You are most welcome! It does take some time to accept the “ new normal “ and pace ourselves . It is very challenging to have a chronic lung condition, especially at this time of the year. We are torn between protecting ourselves vs. social isolation. We are the only ones who can decide what is best for us.
I am glad the medicine provided you with some relief this morning.
Did your doctor recommend Nexium or Pepsin for your hernia? There are certain foods that some people avoid with smaller hiatal hernias if you are interested I will post some links.
Dealing with a loss is especially difficult around the holidays- we want to go back in time and have the holidays like they used to be.
I am so glad that you have a supportive, understanding husband.
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