Discussions
Discussions
Lady Graham Check-In 04/16/2026
I am so glad to have found this group as my first Infectious Disease appointment was last week. My BP was uncharacteristically high when I arrived. The two physicians I saw were very well informed about my positive NTM abcesses positive culture. Unfortunately they only had the reports of my recent CT scans. I am having another CT Scan tomorrow and the digital films have been released to the ID docs. As I currently do not have any symptoms of the NTM, the current decision is to watchful wait. Once my new CT Scan can be compared we will meet again. The physician say it is uncommon to have NTM without symptoms. I do have bronchiectasis, occasionally use a flutter device. It is rare that I produce sputum when using the device. Are there others in this forum who are also watchfully waiting? I wonder how long I could remain symptom free before the NTM causes symptoms to flare. I appreciate all of your postings as I learn more about what could be ahead.
Replies
Lady Graham,
Hello! Welcome to the community. Watchful waiting is more common now than it was in the past. I am glad that you are not currently experiencing symptoms.
I would highly recommend doing your airway clearance, flutter device on a daily basis , twice a day? Airway clearance pushes the mucus up instead of staying stagnant, a breeding ground for more growth of mycobacteria. A high BP is also common while at the doctors office. Do you have a home monitoring BP cuff? We have assistance available for you in many forms. In addition to the community support you receive here on BronchiectasisandNTM360, you can call one of our Patient Ambassadors directly by phone at (833) 411-5864. Our Ambassadors are real live patients with experiences similar to yours and understand your concerns. You can also email us at contactus@bronchandntm.orgto get more information on any specific questions you may have on airway clearance or meds. Our Ambassadors can’t provide medical advice but may be able to assist you with additional information.
Welcome Lady Graham......I do airway clearance every day--It's keeping me infection free
Das23,
Hello! I am so glad you are doing well.:)
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