Discussions
Discussions
Ksmiles123 Check-In 11/29/2025
Hello! I hope that you had a lovely Thanksgiving holiday. Managing our personal energy throughout busy times of the year is challenging for many patients. Some individuals experience a greater level of fatigue when they push themselves too much, other patients do not feel a high level of fatigue. Below is an article I wrote years ago on tips for energy management that I thought it may assist you during the upcoming winter holidays. Please let me know if you have any questions or comments with some of your energy management tips. https://www.bronchiectasisandntminitiative.org/BronchandNTM360social/Community-Discussions/Blog/Article/52/Energy-Management-The-Key-to-Living-with-NTMBronchiectasis
Replies
For me:
Simplifying and de-cluttering, yep, and moving house helped greatly with that! Learning to say no, yep! Rest, yep, or crash.
Realistic when it's hard to breathe. I have a lung disease, of course sometimes it's hard to breathe, but I am, so as long as I breathe out, I know I'll breathe in again. Do something gentle and take my mind off of breathing.
I am sometimes totally accepting, then, I don't know what the correct word is, but frustrated, why can't I do this. For instance - I look at a walk, and it seems obvious, of course I can walk up that hill, ("it's not a hill, it's an incline") and then find myself struggling, and almost wondering why I can't do it.
Daft, I know, but, this is me.
SuePink1,
It is not you alone, you described many of us. I feel that we deal with ups and downs like a roller coaster at times. We have good days , and some frustrating days. We have learned about ACT, Acceptance and Commitment Theory, but I still feel challenged, frustrated at times after so many years. The key is to identify the source of frustration and take action steps to lessen the frustration with that particular issue for the next time. I cannot do hills either- many of us lack extra/ residual volume in our lungs. Pittsburgh has a lot of hills, similar to SanFrancisco. I chose places that are flat to walk, in the area. Otherwise,I drive to that area park that is flat without hills.
One day at a time. Thank you for posting your comments.
It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.
Community posts are monitored by the 360social Community Manager, as well as staff respiratory therapists, educators, and other medical professionals.