Discussions
Discussions
Hedgie Check-In 12/28/2025
Hello All. I'm fairly new to the bronchiectasis journey. I was diagnosed two years ago. It seems like exacerbations are getting more frequent and longer lasting so I am going to Mayo Clinic specialist clinic for more testing and a second opinion.
I'm telling myself regardless of the outcome, I'll know I did my due diligence. But I am really struggling with the limitations this condition is putting on my life. How have you come to terms with the adjustments you had to make in terms of work, social activities, and family?
Replies
Welcome Hedgie.......Read all the info above in the LEARN MORE tab....Do you practice Airway Clearance?? It may help with the exacerbations. Good luck at Mayo--Keep us posted--You'll get lots of support here
Hedgie,Hello! Coping with adjustments in lifestyle take time for some individuals. Some patients experience significant fatigue, others do not. Below is an article with some tips on coping. Wishing you a good experience with Mayo Clinic.https://www.bronchiectasisandntminitiative.org/BronchandNTM360social/Community-Discussions/Blog/Article/190/Its-okay-not-to-be-okay-with-NTMBronchiectasis-Overcoming-fear-related-to-being
It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.
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