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Happyjen Check-In 12/21/2025

In: Check-In
4 2
H

I habe had bronchiectasis caused by pneumonia/respitarory failure/ sepsis last March and looking for more  information than my pulmonologist was able to give me about dealing with small  changes in elevation causing me to need to use oxygen concentrater . I  live at sea level but travel by car occasionally to visit my grandkids at 4500 feet .  It took 2 days of oxygen a dew months ago to adjust to the elevation but still had chest pain and feeling ill. 

Latest Activity: December 21, 2025
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4 Replies

Replies

H

Sorry about so many typing errors . I did not mean to type the word "had" because I  currently have bronchiectasis and I think it is permanent 

Latest Activity: December 21, 2025
7
K

Welcome to the community. No worry about the errors. I am sorry that you are not feeling well when you travel to visit your family. It takes time for one’s body to adapt to the change in altitude. Perhaps, a visit to your Pulmonologist prior to your trip is in order to check your pulse oximeter, lungs. There are meds for patients who have difficulty with higher elevation, such as Diamox but uncertain of the criteria for using it. We have assistance available for you in many forms. In addition to the community support you receive here on BronchiectasisandNTM360, you can call one of our Patient Ambassadors directly by phone at (833) 411-5864 which may be the best choice to discuss this specific topic. Our Ambassadors are real live patients with experiences similar to yours and understand what you are going through.  You can also email us at contactus@bronchandntm.org to get more information about changes in elevation and oxygen. Preparation is far better than dealing with such issues while traveling. 
Our Ambassadors can’t provide medical advice but may be able to assist you with additional information and resources.

Latest Activity: December 21, 2025
7
H

Thank you . What is a good time of day to call that phone number? Are they on eastern standard time ?

Latest Activity: December 29, 2025
3
K

You can call either Eastern time  or Western Time. Someone will call you back within a day. 

Latest Activity: December 29, 2025
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It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.

Community posts are monitored by the 360social Community Manager, as well as staff respiratory therapists, educators, and other medical professionals.

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