Delia November 29, 2016

Hi all, thanks for the comments thus far! We have updated the document above and extended the deadline to Friday, December 9th. We look forward to receiving more feedback. Thanks again!

Scott Cerreta, BS, RRT - Staff November 29, 2016

I reviewed the roadmap and would make two suggestions. <br /><br />1. The new booklet will be titled "The 1s, 2s and 3s of Bronchiectais" The target audience is for the newly diagnosed. This is modeled after The 1s, 2s and 3s of COPD. It will be available in printed booklet form and is dual sided, English and Spanish. Also available for e-download in English and Spanish. These languages will not be combined like the printed booklet. <br /><br />2. I think there is an error with a statement in the section on Introduction - Background paragraph 2. The statement says this: "Bronchiectasis is characterized by dilated and damaged bronchi and is distinct from obstructive<br />lung disease (COPD)." This seams misleading to me. The way I interpret this is that bronchiectasis is not a form of onbstructive lung disease (which is false) and not a form of COPD. I think the statement should state something like "... and is a distinct form of obstructive lung disease (COPD). Even the terms OLD can be confusing. I prefer to just say COPD. <br /><br />Furthermore, the COPDF definition of COPD is written as this: "COPD, or Chronic Obstructive Pulmonary Disease, is an umbrella term used to describe progressive lung diseases including emphysema, chronic bronchitis, refractory (non-reversible) asthma, and some forms of bronchiectasis. This disease is characterized by increasing breathlessness." <br /><br />This statement is misleading and even if corrected should be expanded for consistency with the COPDF definition of COPD. Not all forms of Bronchiectasis qualify as COPD, I agree. Just like not all forms of chronic bronchitis or emphysema are classified as COPD. However, for more advanced forms that cause permanent irreversible airflow obstruction, these are a form of COPD and should be recognized as such. The COPDF has worked hard to change the common thought that all COPD is treated the same. It is important to recognize that subtypes of COPD need special attention and treatment options. This is the case for alpha-1 related COPD, oxygen dependent COPD, chronic bronchitis, emphysema and bronchiectasis. Each of these subtypes have a few very specific treatment options that would not be used in treatment for the other forms of COPD. Therefore, it is paramount to make the distinction that some forms of bronchiectasis results in permanent non-reversible airflow obstruction and is a form of COPD which requires more research and specialized treatment options for the betterment of the individual patient and their specific type of lung disease.

Gretchen November 30, 2016

Scott, thank you so much for your feedback and your thorough look into this Roadmap. All of your comments will add to this most important endeavor!

Delia November 30, 2016

Thanks so much for your feedback, Scott--very much appreciated!

Emily H. December 2, 2016

Hi Scott, <br />Thank-you for your comments. We will correct #1 and work with our clinical stakeholders to clarify the issue you bring up in #2. I agree it is very important to talk about subtypes of bronchiectasis, and we plan to add additional information about considering overlapping COPD and asthma to the introduction and Priority 5 (underlying conditions).<br />Emily

Delia December 9, 2016

Hi all, just a quick reminder that today's the last day to submit feedback on this research roadmap. Please send any feedback via email to info@bronchiectasisandntminitiative.org. Thanks!